May 12, 20211 minLife Update - EvrysdiAs many of you know, at 15 months old I was diagnosed with a rare form of Muscular Dystrophy. I was given a year to live. I believe there...
Mar 8, 20211 minThe Before TimeMany people remember the moment the #coronavirus changed their lives. Iâve heard people say the #BeforeTime. For me I say âbefore the...
Feb 5, 20212 minThe Day My World ChangedFebruary 4, 2014 - My life changed 7 years ago today. That night I wasn't feeling well and went to the ER. I didn't know then that it was...
Jul 22, 20202 minHappy Birthday, Dad!!Happy Birthday, Dad!! Today would have been his 85th birthday, and I know weâd be celebrating BIG! Iâm so glad you were born, and I miss...